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Parent & Guardian Resources
The Kansas Newborn Screening Program has developed information sheets for parents about each of the disorders that newborns are screened for in Kansas. The table lists each disorder, a link to the Kansas Information for Parents sheet, as well as additional information for many of the disorders.
Financial Assistance
Financial assistance may be available for clinic services and treatments. Learn more about the Special Health Care Needs (SHCN) program.
Disorder Type | Conditions |
|---|---|
Hemoglobinopathies | Sickle Cell Disease (SCA) |
Lysosomal Storage Disorders | Pompe |
Other Disorders | Biotinidase Deficiency (BIOT) |
Congenital Adrenal Hyperplasia (CAH) | |
Congenital Hypothyroidism (HYPOTH) | |
Cystic Fibrosis (CF) | |
Galactosemia (GALT) | |
Severe Combined Immunodeficiency (SCID) | |
Spinal Muscular Atrophy (SMA) | |
Critical Congenital Heart Disease (CCHD) | |
Amino Acid Disorders | Phenylketonuria (PKU) |
Maple Syrup Urine Disease (MSUD) | |
Homocystinuria (HCY) | |
Tyrosinemia Type I (TYR) | |
Argininosuccinic acidemia (ASA) | |
Citrullinemia (CIT) | |
Fatty Acid Disorders | Medium chain Acyl-CoA Dehydrogenase deficiency (MCAD) |
Very Long chain Acyl-CoA Dehydrogenase deficiency (VLCAD) | |
Long Chain Hydroxy Acyl-CoA dehydrogenase deficiency (LCHAD) | |
Trifunctional protein deficiency (TFP) | |
Carnitine uptake defect (CUD) | |
Organic Acid Disorders | Isovaleric Acidemia (IVA) |
Glutaric Aciduria Type I (GA-I) | |
3-hydroxy-3methylglutaryl CoA lyase deficiency (HMG) | |
Multiple carboxylases (MCD) | |
Methylmalonic Acidemia/Methylmalonyl-CoA mutase (MUT) | |
Methylmalonic Acidemia/Vitamin B12 Disorders (Cbl A,B) | |
3-methylcrotonyl-CoA carboxylase deficiency (3MCC) | |
Propionic Acidemia (PROP) | |
Beta ketothiolase (BKT) |