Newborn Screening Program

Office Hour Zoom Meetings

Do you have questions about the Kansas Newborn Screening program? Or maybe you have questions for a laboratory expert? If so, join us on Zoom every Wednesday between 1 pm and 2 pm so you can ask any questions related to the Kansas Newborn Screening program. There is no need to sign up for any of these meetings as they are an "open door" event. See you soon! Join the Wednesday meeting.

Guidance, Forms & Resources

  1. COVID-19 Guidance
  2. Forms & Supplies
  3. Brochures
  4. Newsletter

Guidance on Rescreens

Our team has seen an increase in the number of required rescreens, as well as some delays in the timeliness of getting rescreens completed. Additionally, feedback from our COVID-19 Facility Survey indicates that several facilities and providers are encountering family resistance to making repeat visits for recollections. In response, we have drafted the following guidance for physicians, birthing facilities, and families. Share this guidance with your colleagues. Share the family guidance with patient families early and often. 

If you have any questions and concerns, you can reach out to our Follow-Up Program Manager, Shawn Manos.

Newborn Screening is a Public Health Service

The Kansas newborn screening program is a collaborative effort between public health, hospitals, providers and the parents of the infants screened. Screening is a public health service. Since 1965, it has been available to all infants in Kansas and it is done shortly after birth.

Some diseases aren't visible, and unless these diseases are identified and treated early, they can cause severe illness, developmental disability, or in some cases death. To test for these diseases, a baby's heel is pricked and a small sample of blood is collected by the hospital staff about 24 hours after birth. This blood is then sent to the State public health laboratory where it is tested for several different diseases. If the test is abnormal, re-testing must be done to confirm a diagnosis.

State public health staff are available to notify and assist both providers and parents with the next steps. Most infants with abnormal newborn screening results have normal re-testing. Initial results can be abnormal because the blood was drawn too early, the baby is premature, and many other reasons. When the first screening test indicates a problem may be present, a second screening test is done to determine whether or not the infant needs to have diagnostic testing done. If a baby truly has a disease, a system of providers is available to assist the family with immediate treatment.

Kansas newborns are currently screened for 32 conditions recommended by the Secretary of the U.S. Department of Health and Human Services.

  • Screening - About 40,000 KS births/initial tests each year with about 2,000 needing retest
  • Follow-up - Appropriate health care providers are notified and staff track to assure retesting
  • Diagnosis - Newborns with positive screens see medical specialists for a final determination
  • Management - Families and their infants receive ongoing care through a medical team
  • Education - Information and education are available to families and to providers
  • Evaluation - Advisory council oversees program/systems to ensure effectiveness/efficiency
  • The Importance of Timeliness 
  • Thank You for What You Do