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Tools for Patients, Families & Caregivers
Ask your doctor about palliative care and if it may be right for you and your situation.
Ask your doctor about palliative care and if it may be right for you and your situation.
- Answer 5 quick questions to explore if palliative care might be right for you.
- Palliative Care vs Hospice explains the difference between palliative care and hospice.
- Get Palliative Care offers information for patients and those who matter on what palliative care is and who provides Palliative Care services in your area.
- The National Hospice and Palliative Care Organization offers national resources on palliative care, advanced care planning and caregiver support.
- Palliative Doctors contains information and resources on palliative and hospice care. This site includes patient stories illustrating how palliative care can improve quality of life.
- American Association of Retired Persons developed this family guide with you, in mind and as a starting point to help you find the services and support you might need throughout your journey.
- Advance Care Planning, provides specific Kansas details and resources.
- Conversation Project. (Spanish Materials are also available)
- Patient guide to serious illness conversations - What Matters to Me Workbook
- The conversation starter kit can help start important conversations around advance care planning and what you would want if you were not able to speak for yourself. This is available in over ten languages.
- Palliative Doctors contains information and resources on palliative and hospice care. This site includes patient stories illustrating how palliative care can improve quality of life.
- The American Association of Retired Persons developed this caregiver guide for you, the caregiver.
- Caregiver Action Network represents the more than 25 million family caregivers in our country and provides information and education, support and validation, public awareness and advocacy.
- Family Caregiver Alliance (FCA) founded in 1977, was the first community-based nonprofit organization in the U.S. to address the needs of families and friends providing long-term care at home. FCA serves as a public voice for caregivers, offering them assistance and championing their cause through education, services, research and advocacy.
- National Alliance for Caregiving (NAC) is a non-profit joint venture, created in 1996 to support family caregivers of the elderly and the professionals who serve them. There are three NAC partners – the American Society on Aging, the Department of Veterans Affairs, and the National Association of Area Agencies on Aging.
- The National Hospice and Palliative Care Organization offers national resources on palliative care, advanced care planning and caregiver support.
In the following video, we hear from Theresa and Bruce. Theresa is a breast cancer survivor. Together they discuss the role palliative care played, not just in improving Theres'as quality of life, but in supporting the entire family as they live with her chronic condition.